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Plastic Straw Good Practice
Plastic straws have been banned in the UK. This has been on the cards for months but the new legislation was announced only a few days ago. There’s a medical exemption for ill or disabled people who...
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Shielded
On a Friday exactly two months ago, my working week was drawing to an end. It’d been a busy week, full of meetings and rehearsals for a forthcoming tour of our stage show ‘Not I’. With hindsight there...
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Understanding The Risks
Content warning: This post contains descriptions of medical and social risks affecting disabled people that you might find distressing. I got a call from my local Council’s ‘COVID-19 Support Team’...
View ArticleSerena Bhandari - Jobstacle Course
It’s the end of the month and that means it’s time to hear from resident guest blogger Serena. This month Serena’s sharing her experience of job hunting as someone with Tourettes. While job hunting is...
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Care Now
This July marks ten years since I made a life-changing phone call. It was one I’d put off for months and would be the start of a process that’s happening to this day. On 12th July 2011 I called social...
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Bureaucracy Burn Out
I wrote recently about burn out and the steps we take at Touretteshero to help prevent it. While I’m lucky not to get burnt out by my work as an artist, I’m feeling utterly exhausted by the relentless...
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“Build Back Biscuit”
It’s the Conservative Party conference this week and it’s been all over the news. This afternoon Prime Minister Boris Johnson gave a speech about ‘levelling up’. I’m not sure what this means for the...
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Empty Words and Catheters
The Conservatives have been in power for over decade now, and right from the start they’ve been promising a big announcement of a plan to ‘fix’ social care. As a Social Care user this has always made...
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Social Care Success
On Friday I got an email confirming that the funding for my care at home has moved from Social Services to the NHS. This is known as a Personal Health Budget (PHB). They also sent me a breakdown of the...
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Waiting To Work
Tomorrow is Christmas Eve. I’ve got this week off, but I can’t relax quite yet because there’s a load of disability-related admin I need to complete. This includes doing the monitoring for my personal...
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Vulnerability and Me
I’m a vulnerable adult. I’ve been thinking a lot recently about what this means. Maybe it’s because of the pandemic and how often the word ‘vulnerable’ is used: it’s gone viral. In this context...
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Close To Catastrophising
Yesterday was Sunday and early spring sunshine poured into the castle all day. I had a lovely weekend of haircuts with my family and joining Leftwing Idiot for a run round the park – typical restful...
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